Our beautiful 3 year old son Flynn was diagnosed with rare and aggressive form of cancer called Orbital Rhabdomyosarcoma at Christmas. He has been receiving chemotherapy since January.
Before this treatment started, we looked for books to explain to him and his little sister Casey what was happening. However, it quickly became apparent that there was very little available for this age group. There was certainly nothing that included dinosaurs or fancy hats, two of their very important interests.
So we made one!
(It says 'Silly Mommy' because that's my official title, it's what he calls me all the time. I have no idea why.)
The story 'Fancy Champs and the Bad Rhabby' (Flynn's name idea) features a team of three behatted dinosaurs who use their powers to send the 'Bad Rhabby' Rhabdomyosarcoma on it's way. You can see the book in full here.
My favourite dinosaur is probably Dr Rex, who uses a ray gun to blast the Rhabby. ZAP!*
*Disclaimer: this might not be a medically accurate representation of Proton Beam Therapy.
We had the books printed to coincide with World Book Day last week and gave them wrapped with their own fancy hats and eyewear. We had a very fun morning!
I'd love to further develop a project to help better cater to this age group of patients and their families once all this is over. The book has had a positive reception from consultants and charity workers who have seen it at the hospital, who agree that something should like this should exist for young children with cancer.
So now, onwards to Proton Beam Therapy. We are going to Florida next month. We are incredibly lucky that the NHS will pay for this treatment and will fly Flynn, my husband and myself out there. However, we need to raise money to take our daughter Casey with us and pay for all the additional costs involved.
If you could please share our fundraising link or spare anything towards our fundraising we would be incredibly grateful. You can find the page here: https://www.justgiving.com/crowdfunding/supportforflynn