It’s a beast of a condition. Being a rare condition, so little seems to be known and it breaks my heart to see my Dad inflicted with it. He’s gone from being a healthy, active gentleman to a chap who can’t get out of his chair without assistance, let alone manage any of the everyday chores that you and I manage every single day without thinking about it. He chokes when he eats and drinks and has lost the ability to do any of the things he used to love doing. 

It’s maybe too late for him, but if this raises awareness in even one other person and challenges them to get involved to increase awareness, then in time, maybe, we will also start to increase understanding and who knows, even one day eliminate PSP. That would be a dream come true!