Nikolett Kustos's profile
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Nikolett Kustos
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HOLDING COHESION//
COOPERATION WITH THE HUNGARIAN RETT SYNDROME FOUNDATION
budapest, hungary 2014
Rett syndrome foundation rare genetic disorder brother sister sibling orange contemporary children kids boy narration eleven
Rett syndrome foundation rare genetic disorder brother sister sibling orange contemporary children kids boy narration eleven
Rett syndrome foundation rare genetic disorder brother sister sibling orange contemporary children kids boy narration eleven
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The series is a narration of a young boy’s life. Benedek is 11 years old, he started fifth grade this September, he collects minerals and has a sister, Bori who has rett syndrome*. By being and thinking together with Bene I developed a subjectivity about his personality and him as a brother. 
 
*Rett syndrome is a rare genetic postnatal neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child's life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake.
 
budapest, hungary 2014
Rett syndrome foundation rare genetic disorder brother sister sibling orange contemporary children kids boy narration eleven
Rett syndrome foundation rare genetic disorder brother sister sibling orange contemporary children kids boy narration eleven
Rett syndrome foundation rare genetic disorder brother sister sibling orange contemporary children kids boy narration eleven
Rett syndrome foundation rare genetic disorder brother sister sibling orange contemporary children kids boy narration eleven
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Bonds - MOME Photo Exhibition
budapest, hungary 2014

Persistency - Backlight Festival
Moholy-Nagy University of Art and Design
tampere, finland 2014
 
Rett syndrome foundation rare genetic disorder brother sister sibling orange contemporary children kids boy narration eleven
Rett syndrome foundation rare genetic disorder brother sister sibling orange contemporary children kids boy narration eleven
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Nikolett Kustos's profile
Nikolett Kustos

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Nikolett Kustos's profile
Nikolett Kustos
Vienna, Austria

11

I would like to thank all of the families who participated and supported me through this series. Also for the Hungarian Rett Syndrome Foundation Read More

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