HOLDING COHESION//
COOPERATION WITH THE HUNGARIAN RETT SYNDROME FOUNDATION
budapest, hungary 2014
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The series is a narration of a young boy’s life. Benedek is 11 years old, he started fifth grade this September, he collects minerals and has a sister, Bori who has rett syndrome*. By being and thinking together with Bene I developed a subjectivity about his personality and him as a brother. 
 
*Rett syndrome is a rare genetic postnatal neurological disorder that occurs almost exclusively in girls and leads to severe impairments, affecting nearly every aspect of the child's life: their ability to speak, walk, eat, and even breathe easily. The hallmark of Rett syndrome is near constant repetitive hand movements while awake.
 
budapest, hungary 2014
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Bonds - MOME Photo Exhibition
budapest, hungary 2014

Persistency - Backlight Festival
Moholy-Nagy University of Art and Design
tampere, finland 2014
 
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Nikolett Kustos

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I would like to thank all of the families who participated and supported me through this series. Also for the Hungarian Rett Syndrome Foundation Read More
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